Autism Post-Diagnosis Support
Our brains collect information, put it together, and decide what to do with it. Neurodiversity means that we are all different in how we think, feel, and learn, because our brains process information differently.
Most people are neurotypical – their brains work in similar ways, and so they learn in similar ways. A smaller number of people are neurodivergent – their brains process information in different ways. Not everyone who is neurodivergent knows that they are neurodivergent, but some might have a diagnosis like dyspraxia, autism or ADHD.
This definition was taken from a school programme called LEANS (Learning About Neurodiversity at School), which introduces pupils aged 8-11 years to the concept of neurodiversity, and how it impacts our experiences at school.
‘Amazing Things Happen’ gives a visual explanation of autism.
There are lots of organisations and charities that are able to support families, some nationally and others more locally. The National Autistic Society have post-diagnostic information for parents, professionals and autistic adults following a diagnosis.
Talking about an autism diagnosis
- The National Autistic Society (NAS) advice
- NAS book can be bought on their website:
- Workbook that you and your child can work through together
Autistic Bloggers/Writers – are a useful way to find out more about autism
- Chris Bonnello –Blog Autistic Not Weird – Insights from an Autistic Teacher and Speaker
- Ann Memmott
- Pete Wharmby
- Emily (graphic designer, blogger & podcaster)
Communication
- Provide Speech and Language Service
- Leeds Community Health Care – S&L therapy resources
- Hertfordshire and Worcestershire Health and Care – Speech and Language Therapy resources
Courses
Good Beginnings – This is a course for parents/carers who have a child aged 5 years and under who have social communication difficulties and/or a diagnosis of autism. This is a free course.
The Maze Group – Based in Ipswich this support group offers courses to help parents understand their child’s diagnosis and their additional needs (there may be a charge for this)
Rainbow Course – They can offer individual and group support for parents/carers and have various packages with varying costs.
Education
- Essex Local Offer
- SENDIASS
- School transition support – Limpsfield GRANGE and SNAP charity
- LEANS – Learn about Neurodiversity at School
- Autism Central
- Multi Schools Council
- Essex Autism Portal
Executive Function
Executive Function consists of a number of different processes that help individuals to manage everyday life. There are three core areas that make up executive function: working memory (holding information in your head), cognitive flexibility (reasoning and problem solving) and self-regulation (controlling attention, behaviour and thoughts).
How your brain’s executive function works — and how to improve it | Sabine Doebel
Girls
- Rosie King (role model)
- Limpsfield Grange (school for autistic girls)
- Puberty
Mental Health
SET CAMHS
Available through the NHS for children/young people up to 18 years old (up to 25 years for special educational needs). Referral made via GP, paediatrician or direct request.
Telephone: 0300 953 0222 (9am – 5pm, Monday – Friday)
Urgent help or out of hours: 0800 995 1000
National charity dedicated to improving emotional wellbeing and mental health for children and young people including those who may have autism.
Helpline: 0808 802 5544
Local mental health charity for those finding life difficult.
Free online educational resource to improve understanding of mental health problems in children and young people.
Kids Inspire provide mental health and trauma recovery support for children, young people and their families
Parent suggestions
Books:
- ‘Strong Female Character’ by Fern Brady, ‘My sister is autistic’
- ‘Autism is my SUPERPOWER!
- ‘Why Johnny Doesn’t Flap: NT is OK!’ by Clay Morton.
- ‘Isaac and his Amazing Asperger Superpowers’ by Melanie Walsh
- Girl Unmasked: How Uncovering My Autism Saved My Life by Emily Katy
TV programme:
- BBC – Inside our Autistic Minds, Chris Packham
Useful social media group/channel:
Facebook:
- SEN support Chelmsford and SEND Reform England (or SEND in the Dengie)
- Autism Anglia Community Group and PiNs SEN Parents in need of support Chelmsford
- Ronnies Way.
Instagram:
- autisticgirlsnetwork
- neurodivergent_lou
Peer educator support from Autism Central
Mindjam – Mentoring through Xbox
Families in Focus – hold a weekend activity club one of them is in Chelmsford.
Short breaks – also have different support groups and access to beach huts and other tickets.
Sensory
- Provide Occupational Therapy
- Sensory difficulty training video
Sleep
Sleep/relaxation apps
- Headspace: How to help kids sleep better
- Moshi – Sleep and Mindfulness
- Sleep Scotland
Toileting
- Provide Continence and Enuresis Service
- Bladder & Bowel UK – bladder and bowel problems information and advice
- ECC Health and Wellbeing Services
- On Autism and Toileting
- ERIC The children’s Bowel and Bladder Charity
Useful Groups and Activities
Groups
For families of children and young people with additional needs who live in North Essex. Services include free monthly drop-in sessions, specialist weekly programme, workshops and parenting groups.
Telephone: 07708 873023
Support group for individuals and families affected by Asperger Syndrome and High Functioning Autism (Autistic Spectrum Disorder).
Play and Recreation
Stay & play and respite sessions in Braintree, Essex for 0-19 year olds with SEND, their carers and loved ones.
Telephone: 01376 528999
InterAct run short breaks, activities and club opportunities for children aged 8-18 years old.
Offer a safe space for children to game, organise opportunities for young people to meet up and join in activities.
Run two SEND family activity groups at weekends, in Chelmsford and Colchester. The activities includes crafts, badminton, table tennis, board games and trampolining.
SEND Sensation has come together to provide venue-based clubs and community-based activities with specialist staff and facilities to support children and young people with learning disabilities and autism, physical and sensory impairments, and special educational needs and disabilities.
A guide full of useful resources for your child.
Useful Organisations
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Organisations
Leading charity for autistic people and their families. Source of information covering a wide
Regional charity providing advice, care and support for children, adults and families affected by autism.
Telephone: 01206 577678
Special Needs and Parents (SNAP)
Charity for Essex families with children and young adults (up to 25 years old) who have special needs or disabilities.
Telephone: 01277 211300
Chelmsford based parent-led organisation offering holistic care for families of children with disabilities and special needs. Services include assistance with Disability Allowance applications and independent support on educational issues.
Telephone: 01245 353575
NHS Choices (Autistic Spectrum Disorder)
UK health website giving information and sign-posting for autism
Young Person
- Autism understood
- Wrong planet: A web community designed for individuals with autism and other neurological differences. It provides a discussion forum where members can communicate with each other as well as giving access to articles and resources.
- Autistichat: A place for people with autism and related disorders to chat online. The channel is also open to the parents, friends and family of individuals with autism.
Our Service Pages
Community Paediatrician Service