Autism Post-Diagnosis Support

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Our brains collect information, put it together, and decide what to do with it.  Neurodiversity means that we are all different in how we think, feel, and learn, because our brains process information differently.

 

Most people are neurotypical – their brains work in similar ways, and so they learn in similar ways.  A smaller number of people are neurodivergent – their brains process information in different ways.  Not everyone who is neurodivergent knows that they are neurodivergent, but some might have a diagnosis like dyspraxia, autism or ADHD.

 

This definition was taken from a school programme called LEANS (Learning About Neurodiversity at School), which introduces pupils aged 8-11 years to the concept of neurodiversity, and how it impacts our experiences at school.

 

Amazing Things Happen’ gives a visual explanation of autism.

 

There are lots of organisations and charities that are able to support families, some nationally and others more locally.  The National Autistic Society have post-diagnostic information for parents, professionals and autistic adults following a diagnosis.

 

Talking about an autism diagnosis

 

Autistic Bloggers/Writers – are a useful way to find out more about autism

Communication
Courses

Good Beginnings – This is a course for parents/carers who have a child aged 5 years and under who have social communication difficulties and/or a diagnosis of autism.  This is a free course.

The Maze Group Based in Ipswich this support group offers courses to help parents understand their child’s diagnosis and their additional needs (there may be a charge for this)

Rainbow Course – They can offer individual and group support for parents/carers and have various packages with varying costs. 

Education

 

Executive Function

Executive Function consists of a number of different processes that help individuals to manage everyday life.  There are three core areas that make up executive function: working memory (holding information in your head), cognitive flexibility (reasoning and problem solving) and self-regulation (controlling attention, behaviour and thoughts).

How your brain’s executive function works — and how to improve it | Sabine Doebel

 

 

Girls
Mental Health

Autistic Burnout

Autistic Masking

SET CAMHS

Available through the NHS for children/young people  up to 18 years old (up to 25 years for special educational needs).  Referral made via GP, paediatrician or direct request.

Telephone:  0300 953 0222 (9am – 5pm, Monday – Friday)

Urgent help or out of hours: 0800 995 1000

Young Minds

National charity dedicated to improving emotional wellbeing and mental health for children and young people including those who may have autism.

Helpline: 0808 802 5544

Mid and North Essex Mind

Local mental health charity for those finding life difficult.

MindEd

Free online educational resource to improve understanding of mental health problems in children and young people.

 

Parent suggestions

Books:

  • ‘Strong Female Character’ by Fern Brady, ‘My sister is autistic’
  • ‘Autism is my SUPERPOWER!
  • ‘Why Johnny Doesn’t Flap: NT is OK!’ by Clay Morton.
  • ‘Isaac and his Amazing Asperger Superpowers’ by Melanie Walsh

TV programme:

  • BBC – Inside our Autistic Minds, Chris Packham

Facebook groups useful:

  • SEN support Chelmsford and SEND Reform England (or SEND in the Dengie)
  • Autism Anglia Community Group and PiNs SEN Parents in need of support Chelmsford
  • Ronnies Way.

Peer educator support from Autism Central

Mindjam –  Mentoring through Xbox

Internet Safety

Witham Soccability

Families in Focus – hold a weekend activity club one of them is in Chelmsford.

Short breaks – also have different support groups and access to beach huts and other tickets.

Bright Futures Essex – Autism Parent Support Group

Sensory
    Sleep

    Sleep/relaxation apps

    Toileting
    Useful Groups and Activities

    Groups

    The MAZE Group

    For families of children and young people with additional needs who live in North Essex.  Services include free monthly drop-in sessions, specialist weekly programme, workshops and parenting groups.

    Telephone: 07708 873023

    SAFE

    Support group for individuals and families affected by Asperger Syndrome and High Functioning Autism (Autistic Spectrum Disorder).

    Play and Recreation

    POP Essex

    Stay & play and respite sessions in Braintree, Essex for 0-19 year olds with SEND, their carers and loved ones.

    Telephone: 01376 528999

    InterAct

    InterAct run short breaks, activities and club opportunities for children aged 8-18 years old.

    Spectrum Gaming

    Offer a safe space for children to game, organise opportunities for young people to meet up and join in activities.

    Families in Focus 

    Run two SEND family activity groups at weekends, in Chelmsford and Colchester. The activities includes crafts, badminton, table tennis, board games and trampolining. 

    SEND Sensation 

    SEND Sensation has come together to provide venue-based clubs and community-based activities with specialist staff and facilities to support children and young people with learning disabilities and autism, physical and sensory impairments, and special educational needs and disabilities.

    Resource Sheet

    A guide full of useful resources for your child.

    Useful Organisations
    • Organisations

      The National Autistic Society

      Leading charity for autistic people and their families.  Source of information covering a wide

      Autism Anglia

      Regional charity providing advice, care and support for children, adults and families affected by autism.

      Telephone: 01206 577678

      Special Needs and Parents (SNAP)

      Charity for Essex families with children and young adults (up to 25 years old) who have special needs or disabilities.

      Telephone: 01277 211300

      Families in Focus

      Chelmsford based parent-led organisation offering holistic care for families of children with disabilities and special needs.  Services include assistance with Disability Allowance applications and independent support on educational issues.

      Telephone: 01245 353575

      NHS Choices (Autistic Spectrum Disorder)

      UK health website giving information and sign-posting for autism

       

    Young Person
    • Autism understood
    • Wrong planet: A web community designed for individuals with autism and other neurological differences. It provides a discussion forum where members can communicate with each other as well as giving access to articles and resources.
    • Autistichat: A place for people with autism and related disorders to chat online. The channel is also open to the parents, friends and family of individuals with autism.

    Our Service Pages

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    Community Paediatrician Service

    Service Contact